I'm going to borrow a page from Darragh's book (or in this case blog) and ask all followers & viewers of this blog to introduce yourselves. Feel free to write as much (or a little) as you like. Hopefully we'll all get to know each other a bit better :)
OK, I'll get it started! I'm Shelli from Hemet, CA, a small town in the Inland Empire of Southern California. I have been married for 20 years and going strong. We have six kiddos ranging from 7 to 17 -- my oldest is about to graduate from high school and begin college! Very exciting times. I've had CFS for about 3 years now. I'm still learning TONS. My hobbies include reading, a wee bit of gardening, playing on the computer, and all things water related. Since getting ill, I've started a CFS website called Chronic Fatigue Community -- I'm really proud of what I've accomplished with it! The best thing that happened to me was starting a CFS blog and finding so many wonderful, caring people who are willing to help me through this nightmare.
ReplyDeleteI'm Jo, just about to move from Dorset, England to North Wales. I've had CFS for a long time but I've been severe and chronic for about five years and only diagnosed last year. I seem to be improving though.
ReplyDeleteI trained and qualified as a teacher long ago but worked in e-learning before I got too ill to work. Now I enjoy blogging, digital photography, family history and anything else that involves the use of my laptop which I am considering having surgically implanted.
Hi, I'm Sue...almost 44 years old and CFS since March 2, 2002 (7 years). My background is in chemical engineering, but I now work part-time, as I am able, as a freelance writer - mainly topics related to family, health, and travel. I also write reviews and have 2 book blogs (in addition to a CFS blog).
ReplyDeleteI have 2 boys - ages 11 and almost-15 - and they both have CFS, too. Fortunately, treatment for OI has helped both of them and they're able to manage full-time school most of the time and even play soccer.
We live, along with my husband, in Delaware, though I'm originally from Rochester, NY and used to live in New Orleans (where my heart still resides!)
Nice to meet you (again) -
Sue
Thanks for posting Shelli, Jo & Sue. Hope others will follow suit soon.
ReplyDeleteHere's a little bit abt me. I'm Sahiba. Originally from New Delhi, India, but have lived & studied in England for 5 years and now in the States for 7.5 yrs. I'm 31 yrs but feel closer to 24 :) and have had CFS for abt 7 years.
Luckily for me the CFS was diagnosed quite early on, but it took me a long time to come to terms with it. I have come from being bedridden all the time to having a fairly functional life now, and am quite proud of myself for that.
I'm not quite sure what my background is in. My A-levels were in English, economics & political science, then I did BSc anthropology, worked with a financial portal for a year, was a weather girl on TV in India (no, I'm not kidding, seriously!) and then did an MA in communication management. Jack of all trades I guess.
I've been married for 4 yrs and am lucky to have the most understanding and caring husband. and, of course, I have a 5 yr old lab-pit mix called Lola who I think everyone knows.
Hi there! My name is Alyson, and I'm from Houston, Texas. I'm 30 years old and have had CFIDS for my entire adult life. I am able to work full-time now, but I was too sick to work from ages 24-26(ish). I found your blog through other ME/CFS/CFIDS bloggers’ sites, and I have added a link to your blog on my own site. (I hope that’s ok!) I’m trying to find other bloggers with ME/CFS/CFIDS (especially ones who are 35 years old or younger because there are so few of us). Do you know of any? Thanks!
ReplyDeleteHey there... My name is Treya and I'm from Ireland. I'm 29 years old and I have had ME/CFS for four years. I recovered enough to return to work after being sick a year and a half. However due to my ignorance about this illness I soon ended up having a bad relapse and being worse than first time around. I also used to be a very active person in every aspect of life. I can't really do any of those things any more, spending most of my time in my house. My reason for starting my blog was to hopefully help people who are in the early stages of their illness take it seriously and help them to deal with it by sharing my own experiences and hopefully not damage themselves further.
ReplyDeleteI live with my partner and he is truly amazing and supportive having put up with a lot of craziness from me whilst struggling over the last year. I am slowly learning to appreciate a quieter life!!
Thanks for visiting my blog! In relation to your questions about my retreat. I have always been a spiritual person. However everything that I have always read has only really seemed appropriate since getting ill(the usual cliche I guess...). I was a big yoga fan up until recently. I tried doing it again after Christmas, but felt it was effecting my heart. I'm hoping to try again soon though. As I said I stayed in the spiritual care centre where they had nurses and care workers, so I knew that if I wasn't well I would be looked after. Perhaps you could find a place like this. When I was well enough I walked down to the centre and joined in on the meditation. I see you have an interest in Buddhism. I have found this very relevant––especially the teachings on impermanence.
I hope you can find somewhere to go where you will feel safe!!
Treya : )
Hi
ReplyDeleteMy name is Hege Renate and I am a ME sufferer from Norway.
I love your blog and are following it with RSS.
My blog is www.TiredofME.com and there you will find articles in both english and norwegian.
I would very much like you to follow my blog.
Hope to see you!
Thanks for your posts Alyson, Treya and Hege.
ReplyDeleteHi, I'm Debbie from New Zealand and I've had ME since 1994. I was 30 then - I'm 45 now! Nice to find your blog. I have one too which you can find here: http://debbiesdoodlings.blogspot.com/ and I will check out the other links posted here soon :)
ReplyDeleteNice to meet you Debbie...I look fwd to reading your blog and getting to know you :)
ReplyDeleteHi Ms.F
ReplyDeleteI just wanted to tell you about the blog I've just created to tell people about the supplements I started taking a few months ago and which have helped enormously in my recovery. Feel free to take a look. The URL is http://cfscured.blogspot.com/ and I'm not selling anything!
Hi my name is James. I am 31 and I live in Roseville California. (near Sacramento) I was diagnosed nearly 2 years ago now. I do mostly supplements and the like to keep myself going. I am largely house bound and unable to work. I just started blogging myself as a therapeutic outlet and to reach out to others affecting by this sh*tty disease. I cant get out and do very much, and when I do, friends and family members just cant understand my limitations. Its nice to be able connect with other people who understand what I am going through.
ReplyDeleteHi,
ReplyDeleteI'm forgetful Girl. I'm in my early 20s (23 years old to be precise), and got CFS after having Glandular Fever in 2007. I was diagnosed in March 2009. I've only just started a CFS blog. I'm finding it useful to read other people's experiences- it's nice to know I'm not alone in this world! x
Nice to hear from you James & forgetful girl. I look fwd to getting to know you.
ReplyDeleteD. from Canada, CFS 10 years, which is most of my adult life! Thanks for your blog. :)
ReplyDeleteHi
ReplyDeleteI'm Jenny, 48yrs old, married with 3 sons, from Australia and I have lived with CFS for around 10 years. Like so many of you I have struggled with the isolation of this illness, my expectations of, and living a life. This is the first time that I have sought out a community which understands. I'm not sure why it has taken me this long. Partly I think, because I resist defining myself by my illness. It's complicated ... Anyway, I have also started a blog - www.mypinkdoor.com.au - where my focus is (mainly but not always) on finding the joy - while living with illness. It has become important to raise awareness about CFS. I hope you will visit me there.