Showing posts with label hope. Show all posts
Showing posts with label hope. Show all posts

Monday, April 9, 2012

My name is Sahiba, and I suffer from depression

My name is Sahiba, and I suffer from severe suicidal depression and anxiety.

It’s taken me 15 years to say those words out loud, in front of everyone. 

I know that depression is an illness, no more my fault than if I have the flu. And yet, during an intense episode, the agonizing guilt and shame associated with the disease is crippling. 

Maybe it is this shame that makes it so difficult to reach out for help. Or accept help even when freely offered by those who love me. 

Now that I’ve finally started talking about it, I find that the floodgates are opening. I have so much to say about depression - how it played with my fibromyalgia & pain, how it eroded my confidence & self-esteem, and how it is finally leading to self-acceptance and self-discovery. I think I’m going to need a few posts to deal with it all.

The worst thing about depression is how it fools you into believing that you are the illness. It’s like someone has taken over your mind, your body, your very thoughts, and you have no control left over any of these. You are a prisoner within yourself.

Over the years, despite the CFS & fibromyalgia, I have prided myself on staying positive and fighting for the best possible life I could have. But when the depression attacks, it strikes at my very motivation for wanting to recover. “Why do I deserve to draw another breath?” How do you answer that question?

While I have had suicidal episodes over the years, the one that I’m now getting over was possibly one of the worst. Anyone who knows clinical depression will understand that it can take many forms. For me, it’s always been predominantly guilt. But for the first time in my life, anger took over. Suddenly all the internal self-blame became externalized and I couldn’t understand why I abruptly stopped connecting with people. 

I had always been such a patient, caring person. Hadn’t I? Or had I always been this selfish, anxious, bitter person I now felt like? Some days the anxiety was so much that I would spend hours lying trembling and crying on the floor with a knife in my hand, trying desperately to find a reason not to cut my wrist.

The only thing that got me through this time was my husband. In retrospect, this was not fair to him. If I had had the courage to share my illness with more people, the burden on him would have been reduced. I think we both hit rock bottom those days, but we made it through somehow...knock on wood :)

I also wanted to say that though my friends may not have been aware of what was happening with me, it soon became very clear to me who my real friends were. There were some who didn’t have any trouble forgetting about the years of interaction they had had with me. But there were others who may not have understood what was happening with me, but were willing to give me the benefit of the doubt and their support.  And that was all I really needed. Thank you.

Sunday, February 7, 2010

Breathe again...


Here's a pretty good article by Dr. Bruce Cambell on his life with CFS/fibro...

ME/CFS and Fibromyalgia: Rebuilding Life in the Face of Loss

Friday, February 6, 2009

Introspection


OK, it's a new day, new beginning. And I'm over my little sojourn into self pity. So let the good times roll...

But, wait, before we bring out the champagne, I rly want to understand what it is that worries me so when my fatigue gets bad.

After much self-scrutiny and introspection, I have come up with 2 things:

1. Life is passing me by / I am not doing anything worthwhile.

2. Because I am not doing anything, my mind is slowly dying and I'm going to become this vapid creature without a single intelligent thought in her head. I hesitate to use the term 'dumb blonde', especially since I'm not blonde, but you know what I mean...

So, let's address these issues.

Starting with the first, I am going to list all my accomplishments over the past 7 years (big and small) so I can see all that I have achieved since I got CFS:

1. I got married to the most wonderful, caring man.
2. I adopted a rescued dog and am giving her the best life I can.
3. I finished my Masters thesis and got my degree in Communication Management from the Annenberg School for Communication, USC.
4. I have been a Teaching Assistant.
5. I have made a lot of new friends.
6. I have been there for friends who were going through some rough times in life.
7. I have learned yoga.
8. I have taken a teacher training course and am now a certified yoga teacher (I don't teach professionally, but still...)
9. I have decided to start an online business in silverware, and have learned from scratch, everything about buying and selling silver.
10. I have opened an eBay store selling silver items an antique jewelry: Nazraana (meaning 'gift').
11. When I felt I was getting well enough to take up a job, I taught myself Search Engine Marketing (SEM) / Pay-Per-Click (PPC). Unfortunately my health deteriorated again & I wasn't able to work. But I did learn a lot!
12. I am learning how to cope with CFS and am much better now than I was when I first fell ill and was bedridden for months.

Now for point no.2. - the fear that my brain is dying a slow death. Well, here goes:

1. I play games like Scrabble and Sudoku daily to exercise my mind.
2. I read a lot about various topics.
3. I try to write my blog daily.
4. I ask everyone I meet a lot of questions about their work and love to learn things.
5. I manage / do all the calculations etc for my ebay store.

So, I don't think my brain is in immediate danger of complete annihilation.

As I finish this post I realize, and this is my Hallelujah moment, that life doesn't stop. Nor is it completely passing me by.

Maybe I would have accomplished more had I not had CFS. But who is to say that those accomplishments would be worth more than what I have achieved with CFS in the past 7 yrs. Who knows whether I would have made the same friends, or had the same relationships? Or even whether I would be the same person.

Hmmm....something to thnk about...

And, on that note, I am off to sharpen my brain and play some Scrabble on Facebook :)

Thursday, January 22, 2009

I choose Hope!



"Once you choose hope, anything's possible" - Christopher Reeves

I have decided to choose hope!

I know it's a bit late to make a New Year's resolution, but better late, than never, right?

It's easy to get into a downward spiral when you're sick. Especially when it's a chronic illness. In the case of CFS, you don't know why you're ill, you don't know if you'll ever get better, you don't know what's happening inside your body or how you'll feel tomorrow. In fact, the only thing that we can safely say we know abt CFS is that we don't know much!

In such circumstances, no one can really blame you if you feel sorry for yourself, or complain about your lot in life. Sure, no one can blame you, but is that rly who you want to become - "the girl/woman/guy who's sick, and makes sure everyone knows it"?

It's not who I want to be. I want to enjoy what I still can, instead of thinking about all that I can't do. I want to be thankful for everything I have (an adoring husband, a loving family, supportive friends and, of course, my doggie Lola), not cry about what I have lost.

I have always lived my life to the fullest. I have always been (in my opinion at least) fun, funny and fabulous. And fatigue is not going to take that away from me!

So, everybody, together now, lets say it. Loud n clear: "We may be fatigued, but we'll be fabulous forever!"

The glass is half full

I found the coolest article today:

How I embrace optimism...and how you can, too
by Jenni Prokopy, the Editrix

Optimism is not the easiest quality to come by. For us ChronicBabes [babes who just happen to have a chronic illness], it can be hard to embrace fully. But there's a positive energy in the air right now, and I think the time is ripe to capitalize on it and remind ourselves that we can accomplish SO MUCH with just the right attitude.

In two days, the U.S. will have a new president, and with him will come a wave of change. Even if you didn't vote for Barack Obama, I hope you're excited for the new opportunities he represents for ALL of us. The commitment he has made to improving our nation's health care system is strong, and all of us here at ChronicBabes are excited about the possibility that one day soon, everyone will get the care they deserve.

Our new leader represents optimism in action, a concept I've been thinking about a lot lately. For those of us who live with chronic illness, optimism is a precious commodity—something we cultivate and cherish. Obama is a perfect example of what it means to not only be optimistic, but to take that positive energy and drive it forward to create a positive result...and to inspire others to do the same.

Continue...

Tuesday, January 20, 2009

Viva La America





Today, Barack Obama become the 44th President of the United States of America. The Leader of the Free World (what's that all about anyway? Isn't any country other than America free? Or does the POTUS reign over all free countries in the world?).

As a non-American, I may scoff at times at the US. About how 'simple' the average American is, or how the lead story of local news features a cat stuck in a tree, at Sarah Palin's foreign policy comments, or, especially, at Bush and his many, many faux-pas. But I have to admit, days like today make me understand why Americans believe so passionately in their country.

This is a country where a mere 100 years ago, US senator Benjamin Tillman could declare on the senate floor,"We of the South have never recognized the right of the negro to govern white men, and we never will. We have never believed him to be the equal of the white man". And yet, today, President Obama entered office with the highest approval rating of any US President.

But what makes this country truly great is that Obama was not elected because of a misplaced sense of guilt. He didn't win because he was black, or despite being black. He won because he was the best person to lead the country. He won without needing to play the race card.

(Of course, before I start getting too dreamy eyed abt America, I should also remeber that this is the same country that elected President Bush not just once, but twice! - can you rly blame the rest of the world for doubting America's greatness at that point?)

But, coming back to Obama - this gives me hope. Hope that great things can happen. Will happen.

Viva La America! Long live America!